(Original post) February 13, 2013 at 11:16pm           What is POMC Island? where/how did it start?  Let  me tell you a little story: I made " POMC Island" sometime in 2012 But we were 'living' on it for quite a while before it had a  name....   Nathaniel was diagnosed May of 2010..  The  Dr gave me case studies and told me to take notes as there was NO  support group, and very little was known about this.... as you can  imagine it was very hard to comprehend. A few weeks later both my  younger sister and then my Dad died suddenly, a week apart. Needless to  say I was having a very low, very dark and painful time and of course I  was still trying to come to grips with having a child with a rare  disorder and not being able to even  find anyone else with  Pro-opiomelanocortin Deficiency even though the studies I had read, the  studies I had right there in my hands told me that there are other  families out there ...  I have not been able to contact them...   And ...
 
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