~~An E-mail that made my heart just a little bit lighter~~



Dear Karen,  
My apologies for not responding sooner. I am working in Leiden University Medical Centre as clinical biochemist. I have been involved about 10 years before in one case of complete POMC deficiency. I will forward your great initiative to some of our pediatricians, who have been involved in the past with that patient. I am not sure whether these parents want to be in contact. They were not from Dutch origin and did not speak Dutch very well. They no longer visit our hospital anymore. I  think they now irregularly see a pedeatrician in Rotterdam or The Hague. Maybe our pediatrician can help you passing on this information to the parents through her colleague in Rotterdam.   I think Patricia's daughters are not being treated in Leiden University Medical Centre, because otherwise I would have noticed their laboratory results.   Best regards and good luck with your crusade to spread as much information on this subject among patients and professionals.

  Bart Ballieux     


I will forward your great initiative to some of our pediatricians,... Maybe our pediatrician can help you passing on this information to the parents through her colleague in Rotterdam.Best regards and good luck with your crusade to spread as much information on this subject among patients and professionals."


I am just moved to tears thinking what this e-mail means!! (Thank you Patricia for getting this doctor's information to me) GOOD NEWS has landed again on POMC Island... Those of you that have been following our journey KNOW how many 'Waves and Tsunamis' we have weathered, some of you may remember that I have been totally devastated with crushing news and rejections one after another.Yet, I kept on there has never been another option and it is paying off.     

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