A Search for the 'CURE'

you know, we all have heard that phrase...
but what does it mean?
Doctors brainstorming ideas?
lots of technicians in lab coats bent over their studies?! yes.
Fundraisers and Walks and hundreds of people wearing matching t-shirts?
Ribbons on your shirts, wristbands for all?!

yea, sure it means all that.....

but what does it mean to us on POMC Island?????

Well for me as Mommay it means going to The National Institute of Health (NIH)
to have Nate participate in a clinical study.
We will see quite a few doctors and technicians and he will be poked and prodded and have x-rays
and they will draw some of his blood.

Am I looking for answers to and about POMC...sure. I always am...after all THAT is my life, my heart, my reason for looking.
BUT
I am hoping that Nate will PROVIDE some answers...who knows...there may be something so very simple in his
gene structure that someone will see and think...HEY! look at that! THIS is why such and such happens. and there ya go....
an answer to a question that someone has been asking for a long time, or even an answer to a question that has yet to be asked.

I do not expect there to be a CURE for POMC Deficiency...not now.... not today...perhaps not even in his life time...I DO hope that there will be answers and suggestions and a whole lot more questions! and I do hope THAT is what will bring us a cure.
A cure for POMC
and/or a cure for Adrenal Insufficiency,
and/or Hypothalamic Disorder
and/or Hypopituitaryism
and/or Hypothyroidism,
and/or HYPERPHAGIA.
I would like to see a cure for low metabolism,
to be able to strengthen a compromised immune system.
I would like to see sleep apneas stopped.
I would like to see the G.I. problems stop.
I would like a cure for skin-picking.
I would like to see Sensory Processing Disorder  and Autism Spectrum Disorder cured.

YES, I WOULD LIKE A CURE.

Do I search for a CURE?
yes, everyday.
I keep notes about Nate and I tell his team of Doctors what I know and I ask them more questions about things I want to know.

And starting TOMORROW we have a new and exciting journey toward 'THE CURE' as we head up to the NIH....


Thank you all for joining our journey......
for sharing our joys......
and helping us deal with our downfalls.


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