Palm Trees & Dragonfly Dreams

I was approached today and asked if I would talk about PTSD in caretakers of children with Rare Diseases. Would I mind or was it too personal or too difficult? Immediately, I said 'yes, I would do so' quite willingly even though doing so is a bad trigger and I know ahead that I will have to stop and walk away from this then come back to try and explain some more. Yes, It is very personal, quite personal in fact. And as with all things in my life it is difficult. Yet, here I am typing furiously away and here you are reading. Quite often when one hears the term PTSD one thinks of combat veterans. Well I can't compare myself with that as I've never been in the military. But I am fighting. I am fighting for my son, I am fighting for his childhood. I am fighting so that others after me don't have to feel they way I've felt. My enemy is my son's diagnosis of a rare genetic condition.  I will try to make this as general as possible because I think that...

      te·nac·i·ty təˈnasədē/ noun noun: tenacity the quality or fact of being able to grip something firmly; grip. "the sheer tenacity of the limpet" synonyms: persistence , determination , perseverance , doggedness, strength of purpose, tirelessness, indefatigability, resolution , resoluteness, resolve , firmness , patience , purposefulness, staunchness, steadfastness, staying power , endurance , stamina , stubbornness , intransigence , obstinacy , obduracy, pertinacity "she practices her gymnastics routine with the tenacity of a bulldog" the quality or fact of being very determined; determination. "you have to admire the tenacity of these two guys" the quality or fact of continuing to exist; persistence. "the tenacity of certain myths within the historical record"     Some days I feel that all I do is eat, drink, and sleep "AWARENESS" and then there are oth...

Hello everyone! We hope you all are feeling fresh and ready for the new year and hope that it is everything you need it to be. I have our projects set up for school this month, and I thought that I would just make a quick blog and share them with you here are just a few. As everyone that follows ( www.facebook.com/POMCmomma )  Nate's story knows Monday is our Baking Day and boy I am looking forward to our monthly 'Raddish' box to help with our kitchen skills, (no they are not paying me to advertise) They have a whole lot to offer the homeschool community look for the link on their page, and their Bonus bites. I have already made little books out of the information they have on the website. https://www.raddishkids.com/ As part of our 'daily walkies' we will now be going for a lot of bike rides! Nate got a super bike just before the holidays and we had special pedals added so he could safely ride it. I love it, he loves it! Thanks to our 'evac-u-c...