The aftermath of the last storm....refusing to sink.....riding the waves


Raising AwarenessRaising Awareness

~~~~~So I am taking this difficult time and I am looking for the positive.~~~~~

1) Unique the really large  rare genetic support group declined to help. (to me it sounded like we were not rare enough for them) but... they then referred me  ---> to POMC Deficiency Disorder= Proopiomelanocortin/POMC Island...HA.HA.HA.HA.HA.  :'}

2) The University of Montreal has done the same thing. they 'cannot' help. :"( this one really cuts me to the quick! it is not unlike setting a cup of water in front of yet just out of reach of someone very thirsty)

3) MedHelp has sent me some referrals and yup....they referred me ---> to POMC Deficiency Disorder= Proopiomelanocortin/POMC Island!!!! HA.HA.HA.HA. :"}

4) The Doctor in Germany has told me that he has 2 male patients (pre-twenty) and that they are in satisfactory condition. :) but, is that it? no further? dead end??

5) the Doctor in England requested more information and referred me to the German Dr. :") but, is that it? no further? dead end??

~~~ what is the good? the positive????~~~

a)THESE PEOPLE (and by extension others will too)  KNOW KNOW WE ARE HERE!!!

b)I MUST BE DOING A GOOD JOB OF RAISING AWARENESS BECAUSE (two times) I HAVE BEEN REFERRED TO ME!!! ~~~

Yes I still hurt, it is NOT easy to be alone especially when you KNOW others are out there and you cannot reach them.

I am alone.I am tired.I am sad. I am heart-sick..... BUT...I have a support group, and I have friends and I am NOT DOWN!!!!!!

~~ LIFE IS GOOD EVEN WHEN TIMES ARE TOUGH.~~

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