(Original post) February 13, 2013 at 11:16pm What is POMC Island? where/how did it start? Let me tell you a little story: I made " POMC Island" sometime in 2012 But we were 'living' on it for quite a while before it had a name.... Nathaniel was diagnosed May of 2010.. The Dr gave me case studies and told me to take notes as there was NO support group, and very little was known about this.... as you can imagine it was very hard to comprehend. A few weeks later both my younger sister and then my Dad died suddenly, a week apart. Needless to say I was having a very low, very dark and painful time and of course I was still trying to come to grips with having a child with a rare disorder and not being able to even find anyone else with Pro-opiomelanocortin Deficiency even though the studies I had read, the studies I had right there in my hands told me that there are other families out there ... I have not been able to contact them... And ...
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